The Cystic Fibrosis Institute – a non-profit limited company for therapeutic research and development (MI) is a wholly-owned subsidiary of the Mukoviszidose e.V. (German cystic fibrosis association) and is located in Bonn. The MI was established to promote research projects related to cystic fibrosis and to make the results of this research accessible for people affected by cystic fibrosis. In this case, promoting research means not only providing financial support for a specific research project, but also the targeted relaying of scientific services for the planning, implementation and evaluation of (clinical) projects. These should assist scientists in the high-quality implementation of their innovative project ideas. The MI would like to build bridges for the CF therapy (prevention, diagnostics, therapy) of the future! Therefore, the identification of new research groups, the search for new ideas and bringing cooperation partners together are the MI’s central tasks.
The German Cystic Fibrosis Registry collects anonymised data regarding the patients' state of health and therapy. Using this data, statements can be made about the medical care situation in Germany. In the report different aspects of this evaluation are presented.
The Mukoviszidose e.V. offers different possibilities of supporting research funding. These funding tools aim to make CF-related research more interesting for clinicians and research scientists in order to find new treatments for cystic fibrosis patients.
Clinical studies are necessary to develop new medication. The research network CF-CTN Germany coordinates the clinical studies related to cystic fibrosis in Germany. The Cystic Fibrosis Institute is the central contact point for the network.
The Mukoviszidose e.V. offers a Scientific Meeting every year in September with changing topics regarding recent research on cystic fibrosis (CF). It is organized by the Cystic Fibrosis Institute in collaboration with the German CF Research Community (FGM).