Please contact us if you have any questions
Address
Mukoviszidose e.V. Bundesverband
Cystische Fibrose (CF)
In den Dauen 6
53117 Bonn
Telephone: 0228 98780-0
Fax: 0228 98780-77
E-mail: info(at)muko.info
Donations Account:
IBAN DE 59 3702 0500 0007 0888 00
BIC BFSWDE33XXX
SozialBank
Management
Dr. Miriam Schlangen
Chief Operating Officer
Tel.: +49 (0)228 98780-61
Email: MSchlangen(at)muko.info
Dr. Jutta Bend
Guidelines / newborn screening
Tel.: +49 (0)228 98780-47
Email: JBend(at)muko.info
CF-CTN Germany Coordination Team
Tel.: +49 (0)228 98780-43
Email: CFCTN(at)muko.info
Manuel Burkhart
German Cystic Fibrosis Registry
Tel.: +49 (0)228 98780-46
Email: MBurkhart(at)muko.info
Dr. Uta Düesberg
Certification of CF-institutes
Tel.: +49 (0)228 98780-45
Email: UDueesberg(at)muko.info
Anna-Lena Strehlow
Therapy Promotion
Tel.: +49 (0)228 98780-40
Email: AStrehlow(at)muko.info
Dr. Sylvia Hafkemeyer
Research Funding / Registry studies
Tel.: +49 (0)228 98780-42
Email: SHafkemeyer(at)muko.info
Dr. Stephanie Friedrichs
Therapy Promotion / Research Funding
Phone: +49 (0)228 98780-50
Email: SFriedrichs(at)muko.info
Coordination office of the National Action League for People with Rare Diseases (NAMSE)
Dr. Miriam Schlangen
Head of the coordination office
Tel.: +49 (0)228 98780-61
Email: MSchlangen(at)namse.de
Katharina Heuing
Scientific Manager
Tel.: +49 (0)228 98780-62
Email: KHeuing(at)namse.de
Nora Benedix
Administrative Project Assistant
Tel.: +49 (0)228 98780-51
Email: NBenedix(at)namse.de
Regularly informed with our newsletter (German only)
